![{637178002151348476}_完整橫標(白字)](https://hedefoundation.org.tw/wp-content/uploads/2023/10/637178002151348476_完整橫標白字-1-300x54.png)
社團法人臺灣雷特氏症病友關懷協會
在孩子出生的時候,我們對未來充滿希望,12-18個月之後,有一天世界都變了,醫師告訴我們,孩子可以領身心障礙手冊,聽到一個陌生的名詞【雷特氏症】,不是遺傅也不是後天感染,僅僅來自基因的突變。在嬰兒時期才開始發病,多數為女孩,終身無法生活自理,全身退化性疾病且無藥治瘛。
為了照顧孩子,亂了生活步調,我們沒有辦法找到固定的工作,直到【社國法人臺灣雷特氏症病友關懷協會】的安排
把我們凝聚在一起,在絕望之中,讓我們重回自信找到了另一個舞台。
我們來自屏東、潮州、台南,每個禮拜不遠手里兩次以上在高雄會合,我們自行研發配方,只希望做出最好的產品,希望透過品質贏得大家的認同,而您的肯定,讓我們多了堅持下去的力量。
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